My dad is gone. I’ve avoided saying those exact words and typing those exact words, but those are the words that keep swirling around in my head. My dad is gone. I’ve been quiet about his diagnosis, his short but courageous journey, for reasons that I don’t even entirely understand myself. For someone who shares …
Some years it really is easier and then, out of what feels like total left field, it’s a bad year again. I’ve written about this week before and how my mind is completely distracted, but I don’t think I’ve talked about the weight of it, the physical ache, the near-constant feel of tears behind my …
“The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate.” – Kelle Hampton There are some people who think we should have this all figured out; that …
You might think, from the title, that I’m about to tell you how incredible it was to witness the birth of my new niece, Penelope, this week. You’re not entirely wrong. Being allowed to be in that room, to share this moment with my sister – my other half – is beyond anything I can …
We’re back home and on the mend. It was a bit of a tough transistion, getting nursing care arranged for both at home and at school and so Lily was away from school longer than we had hoped, but she went back late last week and has been as happy as they come ever since. …
It’s been a pretty crazy three days around our house. So let me tell you a little story about what I call, “When There Is One Too Many Holes”. Once upon a time… On Thursday past, Jess and I noticed that the area around Lily’s g-tube stoma was looking rather angry. It was red and …
