So, 2020. I’m writing this post in the basement apartment of my father-in-law’s house. We have essentially been living here since the middle of August and while it now feels like a second home it still seems completely surreal. How do you even start after the year that has been? We thought that 2019 was …
I couldn’t let another World Down Syndrome Day go by without some sort of post. Looking back through, I realized that it’s been at least 2 years since I’ve spoken about this day at all, which is astonishing to me because it really is one of my favourite days of the year. Starting a few …
It’s been a year. A year since I’ve written anything. I don’t just mean here, but anywhere; a full year since I’ve put pen to paper or fingers to keyboard and written anything more meaningful than a thank-you card for Lily’s teachers at the end of the school year. I couldn’t begin to tell you …
My dad is gone. I’ve avoided saying those exact words and typing those exact words, but those are the words that keep swirling around in my head. My dad is gone. I’ve been quiet about his diagnosis, his short but courageous journey, for reasons that I don’t even entirely understand myself. For someone who shares …
Some years it really is easier and then, out of what feels like total left field, it’s a bad year again. I’ve written about this week before and how my mind is completely distracted, but I don’t think I’ve talked about the weight of it, the physical ache, the near-constant feel of tears behind my …
“The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate.” – Kelle Hampton There are some people who think we should have this all figured out; that …