In 1995, in a little town called New York City, a little event was held for the first time called the Buddy Walk. It was organized by the National Down Syndrome Society and was created to raise awareness and funds for people living with Down syndrome and their families. Over the years it has grown …
Cardiac Kids
By being a, “heart mom”, we get to see a lot of amazing things that happen on the 4th floor of Sick Kids. The staff – doctors, nurses, OT’s, dieticians, child life specialists – they all play such a huge role in making incredibly scary situations actually seem managable. Luckily, behind them, is a group …
Great Big Huge Leaps
The last couple of weeks have shown some huge developments in Lily’s developmental skills. One of our new therapists from Holland Bloorview has just been this incredible ray of sunshine in our lives and it would be easy to chart Lily’s developments alongside Catherine’s visits. We’ve been lucky to have some incredible therapists working with …
Seeing Things Clearly
So Lily has glasses. Sorry, let me rephrase that, Lily is rocking glasses. During her eye surgery last year, our ophthalmologist was able to get a better look at Lily’s eyes and after our follow-up appointment a couple of weeks ago, she told us that Lily was probably a bit near-sighted and recommended that we …
A Post Full of Heart…
February is Heart Month – the month that celebrates love also takes a little time to bring awareness about CHD (Congential Heart Disease) to the forefront of people’s minds. Yesterday my Facebook page, twitter feed and blogrolls were all filled with people sharing their experiences – hopeful experiences. I struggled all day trying to figure …
Fierce
If, fifteen years ago, you had told me that I would be able to sit in a room, reading medical records and understand the following sentence, “loss of grey-white differentiation consistent with Hypoxic Ischemic Encephalopthy; insult occurring in the bilateral parietal, temporal, occipital lobes and occurring the the posterior frontal lobe along the vertex”, I …