The snow just keeps piling up and all I want to do is bury my body under 6 layers of blankets and my head in an amazing book, but already the sounds of September and school are starting to call. A little background here. When Lily was first placed with us, we had found an …
60% is a Passing Grade
That’s a pretty amazing number. It wasn’t some big amazing goal to start with, but we’re at 60% and I’m proud and grateful! So please keep sharing this page, please keep telling people you know….because think about the difference that 50 people will make…. 1. For each donor, up to 8 people’s lives can be …
Into the New Year
The miracle of Christmas may just be that we made it through December. Between our big cardiology visit, Lily’s birthday, a giant ice storm that made our power go away, Christmas and New Years, I’m honestly just a little happy that we are into January and a fresh start at a fresh year. Don’t take …
Happy Heart, Happy Birthday
Cardiology came and went. They sedated, they scanned, they saw, they pronounced her heart strong and her lung pressures stable. They said to come back in a year. It was music to our ears. There was a moment, one breath-holding, heart stopping moment. While Lily was conked out from the sedation (which was rare in …
I’m Still Standing
In this case, a picture truly is worth a thousand words…. Beyond the absolute mess of our house (full on renovation mode, with everything from the basement now taking up residence in our living room/storage container), all I see is this: our incredible, amazing, awe inspiring, reminds me of what a miracle she is everyday, …
Which Mom Am I?
When your child has a special need, regardless of whether it’s a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special. My problem is that I don’t know where …