I’m home again. I’m hoping to stay here for quite some time because as much as I love Sick Kids when I have to be there, after 66 days I was ready to be back at my real home with just me, the mom’s and my dog Ellie. The doctor’s finally decided to let me …
A Rare Face…
A mom post tonight. They were able to pull the temporary Ng tube yesterday because our Lily is doing so well with her G-tube feeds. It’s a gorgeous face that’s been lurking behind that tube. A tube, that we’re now seeing must have been far more irritating and uncomfortable then we had ever thought because the personality change we have seen in the last 24 hours is remarkable. Lily has always been a happy, content baby but now she’s smiling all of the time, she let me brush her hair (getting all of the tangles out) and put in the pigtails without a peep and even let the nurse and I do her dressing change (which normally causes a total breakdown) without a single tear. Between stretching out her vein and getting rid of the Ng tube, it feels like we’re bringing home an entirely new kid. She’s amazing.
Lily – the (Ng) Tubeless Wonder!
I have had a really great week. I was worried about saying that because it seems that I sometimes manage to jinx myself and say that things are going well and then something happens and then I’m stuck telling you about something crappy. But so far this week is pretty good – I mean it …
A Day in the Life
Today marks my 60th day in the hospital. I’ve come to realize that this is a really long time because even my favourite nurse, Shelly (who comes to visit and play with me whenever she’s working, even when she’s not my nurse) has told me that I really need to go home and not come …
Another Week End, Another Surgical Adventure Begins…
The general consensus seems to be that I look really really good for someone who has so many things wrong with me. I’ve been eating like a champ this week and more importantly, eating like a champ from a bottle. My OT Lisa, says that it’s safe for me to try 3 meals a day …
Around and Around and Around
I know that we’ve laughed at what a trickster I am before, but it really is true. In order for me to get to go home, cardiology wanted to make sure that everything about my heart and lungs were working fine. They were a little concerned about some of my earlier test results and wanted …