I think you guys totally missed me. I totally missed you. Well, really I missed being conscious, but you guys are generally included in that. I’m back! Very very early this morning, before the mom’s even showed up at the hospital, the people who always wear masks came and yanked my breathing tube out of …
Lucky
I walked into Lily’s room this morning and got told that she had an amazing night. She only needed to be sedated once (as opposed to the 2 or 3 times which had become the norm) and they were hoping to fully pull her ventilation tube that morning. I was shocked and a little doubtful …
Beautiful Beautiful Brown Eyes…
For the first time in 4 days I got some amazing eye contact with our little Lily. After her Echocardiogram this afternoon she was very agitated and after some bum patting and an off-key rendition of Beautiful Boy by John Lennon, she was finally settled and very awake for the first time in days. I …
Not a show-off anymore…
They closed Lily’s chest today. I can’t even begin to describe the relief that Mommy and I both felt while we were standing in the middle of this group of doctors and heard them say her fluid output was finally high enough for them to close. We just kept smiling for a good 10 minutes …
Restless nights and peaceful days
It seems that Lily has a tendency to sleep and rest really well during the day and then get very agitated at night. We could have told them that she was a bit of a trickster, but we thought it would be more fun for them to figure it out by themselves. So, for the …
Day 2
Day 2 went very well for Lily, although it ended up a little bit of a rough(ish) night. Children with Down Syndrome are apparently hard to sedate so she kept waking up and was obviously in pain. So the night nurse had to keep giving her extra sedation and morphine to keep her nice …