Shortly after Lily came home, Jess was talking to a woman who said to her, “I’ve heard about people like you.” A little taken aback, for a moment Jess wasn’t entirely sure which of the “like you” categories the woman was referring to – lesbians or parents who had chosen a child with Down Syndrome. …
The thing about the thread that binds parents of children with Down syndrome is that, like all thread, it can sometimes seem invisible. There are moments in time when parenting our children can sometimes feel lonely. This doesn’t mean that we don’t have amazing support systems from our family and friends but there are days …
Once Lily was officially home with us, we began taking her to weekly sign and music programs aimed specifically for parents and children with special needs. The majority of children attending the program along with us had a diagnosis of Down Syndrome, so it felt a little bit like walking into our own special clubhouse. …
We took some time after Paxton to just settle for a bit. After all of the rushing, we didn’t want to keep pushing ahead and were obviously scared about more heartbreak. We needed the time to reflect and figure out what to do differently the next time. We knew that there would be a next …
12 months after camp ended, we were back again. It was a completely different experience leading up to our time away; I felt like a teenager who aches to be back at summer camp all through the school year because that’s where she really belongs. I couldn’t wait to get back and see everyone and …
This started off as just a post for day 2, but became a work in progress along the way 🙂 While my interactions with Jordan helped me begin to understand that our differences were incredibly small, I would be lying if I said that they changed everything about what I thought about disabilities. While I …