Time is a funny thing. For the past few weeks Jess and I have been constantly reminding ourselves that “time heals” – we knew that we just needed to give Lily and her body some time to get over this bout of…well, whatever it was. And of course we were right, but those weeks felt …
A Challenging Post
I find one of the most difficult challenges about parenting a child with special needs is trying to find a work/life balance in a world where these 2 things don’t always want to play nicely together. I’m incredibly fortunate that my job offers flexible hours and it is a benefit that I value over any …
Remedy For A No-Sleep Night
Lily is still awake. She’s not feeling great and has been off. She’s impossible to distract, crying unless she’s being held and generally just messy. It’s been, what we call, in this house, a 2 parent day – where it is literally impossible to put her down for the fear of her vomiting again because …
Love is Love
This is my Pride. It took a lot of years, but then this lady happened and suddenly everything made sense. I was no longer ashamed or worried about what people would think. The door opened to a world where love is just love, and families and just families, and I get to spend every single …
What is Lily Looking For?
She’s looking for number 100! 100 what, you may ask yourself? A while ago, we asked the people we love to take a few minutes out of their lives to register to become organ donors. Originally we set our goal at getting 25 people to register. We reached that goal and then decided to double …
Tomorrow Came
And of course, tomorrow was different. Hours after posting my last entry, I had a conversation with Jess where I asked her to remind me that when I’m struggling like that, that the best thing I can do for myself is to take 15 minutes to just sit and write it out. Thoughts that are …