I’m walking around in a fog – or worse, on the constant edge of tears. Every time I allow myself time to just stop I end up back there and I can’t tear myself away. I know that I’ve joked in the past about my PTSD state post Lily’s cardiac arrest. I know that I’ve …
Tomorrow and Tomorrow and Tomorrow
Today I was, once again, reminded that life can sometimes throw you incredible curves and that within mere moments everything can change. While I’m at home tonight feeling very grateful that our scariest moments with Lily ended happily, my heart is with other people and hoping that, for them, tomorrow is a better day. Tomorrow …
Dear Sir or Ma’am
For the first time I had someone laugh at Lily. I wasn’t expecting it and it shocked and sickened me. I sat there, looking at my instragram page and saw those seemingly innocent letters: “lmfao”. I peeked at the user pic and I wanted to vomit. I knew once I clicked on the profile that …
Buddy Walk!
In 1995, in a little town called New York City, a little event was held for the first time called the Buddy Walk. It was organized by the National Down Syndrome Society and was created to raise awareness and funds for people living with Down syndrome and their families. Over the years it has grown …
Cardiac Kids
By being a, “heart mom”, we get to see a lot of amazing things that happen on the 4th floor of Sick Kids. The staff – doctors, nurses, OT’s, dieticians, child life specialists – they all play such a huge role in making incredibly scary situations actually seem managable. Luckily, behind them, is a group …
Great Big Huge Leaps
The last couple of weeks have shown some huge developments in Lily’s developmental skills. One of our new therapists from Holland Bloorview has just been this incredible ray of sunshine in our lives and it would be easy to chart Lily’s developments alongside Catherine’s visits. We’ve been lucky to have some incredible therapists working with …