Cardiology came and went. They sedated, they scanned, they saw, they pronounced her heart strong and her lung pressures stable. They said to come back in a year. It was music to our ears. There was a moment, one breath-holding, heart stopping moment. While Lily was conked out from the sedation (which was rare in …
I’m Still Standing
In this case, a picture truly is worth a thousand words…. Beyond the absolute mess of our house (full on renovation mode, with everything from the basement now taking up residence in our living room/storage container), all I see is this: our incredible, amazing, awe inspiring, reminds me of what a miracle she is everyday, …
Which Mom Am I?
When your child has a special need, regardless of whether it’s a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special. My problem is that I don’t know where …
Lily’s New Wheels
There are certain specialists we see at Sick Kids that leave us less stressed than others. I like to think of these as “maintenance” appointments – doctor’s we need to see because there was an issue in the past or things that are just part of life and require some follow-up: our regular pediatrician, opthamology and …
Thankful
With all of the social media that surrounds us, it was impossible to miss people discussing the things they were thankful for this weekend. Everywhere I looked people were sharing tidbits of their lives and celebrating the small things that make them so fulfilling. So while I’m a few days behind, here is my list …
Just Say It
You’ll excuse me if I self-indulge for a minute or two. Sometimes being Lily’s mom is hard. Please don’t misunderstand, I don’t think there is a mother out there who can’t say that it is a hard job – balancing responsibilities, conflicting needs, finding a balance that keeps you sane while still meeting the needs …