I know you have all been so supportive and amazing with Lily so I thought I would blog a quick update since I may not get another chance for a bit. Lily had been doing well (as well as expected) after our event on thursday. They had pulled her off the ventilator but still needed …
A Better Day
What we have learned today is that Lily is a mystery. There is no obvious, jump out at you, reason that she went into cardiac arrest. That, as you can imagine, was not the most reassuring sentence that we heard today. If they’re not sure of the reason, then how on earth can we go …
The Worst Day
Lily can’t update her blog right now, as she has had a very bad 36 hours. We are back at Sick Kids in the PICU (Paediatric Intensive Care Unit). We don’t yet know what’s wrong or how we ended up here, but this is where we are. This morning, at 7:30am, from in my sleep, …
Missed Me, Missed Me, Now You Have to Kiss Me…
It’s been a few days and I’ve heard some rumblings that people are missing me and my posts. I’m really sorry for the delay, but I have been really really busy getting all settled back at home! It’s true – on Saturday morning the awesome nurse practitioner, Erica, woke me up early and sent me …
No News is….No News
It’s been a few days since I’ve had a chance to break free of my very busy schedule of sleeping, going for walks around the 4th floor and sitting in my bouncy chair, to update but now that it’s 11:11pm at night and I’m still not even remotely sleepy, I thought I’d take a moment …
Can 2 be considered a streak?
I’ve had 2 good days in a row. The mom’s are really happy about that. Wednesday was absolutely my best day – I was in almost no pain, I was happy to just hang out and watch everything and I even smiled more than once! I had some visitors – Grandma and Grandpa surprised me …