They closed Lily’s chest today. I can’t even begin to describe the relief that Mommy and I both felt while we were standing in the middle of this group of doctors and heard them say her fluid output was finally high enough for them to close. We just kept smiling for a good 10 minutes …
Restless nights and peaceful days
It seems that Lily has a tendency to sleep and rest really well during the day and then get very agitated at night. We could have told them that she was a bit of a trickster, but we thought it would be more fun for them to figure it out by themselves. So, for the …
Day 2
Day 2 went very well for Lily, although it ended up a little bit of a rough(ish) night. Children with Down Syndrome are apparently hard to sedate so she kept waking up and was obviously in pain. So the night nurse had to keep giving her extra sedation and morphine to keep her nice …
You take the good, you take the bad….
Today was the longest day of my short little life. After bothering me late last night to have that silly bath, the mom’s woke me up at 5:30am this morning, so that I could have some water, change my diaper, put on clean sleepers and then they pulled my tube out. It was all so …
Surprise Surprise!
I`m not really liking the mom`s right now. I had a really long day today: first I woke up around 5am because in my sleep I managed to pull the tube out of my nose, but not all of the way out so it was really uncomfortable. Mama C woke up and pulled the rest …
Busy Bee
My datebook is very busy for the rest of this week. Last night I had a wonderful surprise when my Theresa, Jason and Joey all came over for dinner. Joey loves me so much and just kept trying to hug me and squeeze me – at one point, I was sitting on his belly and …