31 for 21: The Rest of the Journey

We took some time after Paxton to just settle for a bit.  After all of the rushing, we didn’t want to keep pushing ahead and were obviously scared about more heartbreak.  We needed the time to reflect and figure out what to do differently the next time.  We knew that there would be a next …

31 for 21: Days 5 & 6

12 months after camp ended, we were back again.  It was a completely different experience leading up to our time away; I felt like a teenager who aches to be back at summer camp all through the school year because that’s where she really belongs.  I couldn’t wait to get back and see everyone and …

31 for 21: Days 2, 3 & 4

This started off as just a post for day 2, but became a work in progress along the way 🙂 While my interactions with Jordan helped me begin to understand that our differences were incredibly small, I would be lying if I said that they changed everything about what I thought about disabilities.  While I …

The Faces of PVS

The moment that Lily’s surgeon started talking is captured like a snapshot in my mind.  For me, it’s the line in the sand that defined “before” and “after”.  We, unlike so many parents of children with Congenital Heart Defects (CHD), knew of Lily’s original heart issues, AVSD and Coarctation of Aorta; we were prepared for …

A Dirty Shoe

“It looks like she may have stepped in gum, or play-doh.” We’ve been harbouring a little secret around here.  Our little bum-scooting maniac is showing signs that she’s no longer content with just having access to the things directly in front of her on the floor.  She’s decided that the things on the other side …