When you parent a child with special needs and any type of medical needs, you often hear people say, “I don’t know how you do it.” Most of the time I just shrug it off because I don’t always know either, but as a parent, you don’t think about it, you just do it. However, …
Ask Away
So clearly my attempt at {31 for 21} has been a failure of epic proportions. I’m not sure when we October ran past me, but it did and suddenly I’ve woken up and there are only 13 days left in this month. I had started with, what I thought was, a great idea – taking …
Which Mom Am I?
When your child has a special need, regardless of whether it’s a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special. My problem is that I don’t know where …
One Year Later
In our first year of life with Lily, we celebrated every anniversary we could think of: the day we got the phone call, the day we met her, the day she had her first overnight visit, the day she came home for good, the day of her heart surgery, the day of her cardiac arrest. …
Those Genetics…
A mom post tonight…. It’s become part of our routine to see Lily’s birth parents every few months. We really enjoy seeing them: watching the expression on their faces when they see how much she has grown and what she can do. There is something immensely fulfilling about watching her birth dad hold her for …
Renovation Mode
Guys, Mommy is a destruction queen! For the past few weeks she has been working day and night in the basement of our house to, “get it ready”. For a while I didn’t really know what that meant but I do now and it’s a pretty amazing thing. The mom’s have decided that it’s time …