Lost

“The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate.” – Kelle Hampton There are some people who think we should have this all figured out; that …

Worried Voice vs. Mamma Voice

So, Lily  has had a walker since she began junior kindergarten last year. We’ve had some success with it, mostly because the staff at her school are incredible and just keep pushing her.  She would take a few steps but for the most part would just use both feet at the same time to push …

A Dirty Shoe

“It looks like she may have stepped in gum, or play-doh.” We’ve been harbouring a little secret around here.  Our little bum-scooting maniac is showing signs that she’s no longer content with just having access to the things directly in front of her on the floor.  She’s decided that the things on the other side …

#500 for 5

5 years.  Since just after that horrible day 4 years ago, the goal has been 5 years.  “Take her home and grow her,” they told us, “if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5.”  It seemed impossible.  5 years felt more like a …

The Amazing Constant Chaos

When you parent a child with special needs and any type of medical needs, you often hear people say, “I don’t know how you do it.”  Most of the time I just shrug it off because I don’t always know either, but as a parent, you don’t think about it, you just do it. However, …

Saying Thank You

On July 14, 2011 at 7:30am, 2 men became our family’s heroes. From that moment on it seemed incredible to me that we had barely spoken to them, didn’t know their names and never had the chance to say thank you. How was it possible that there were people just out there that had played …