So clearly my attempt at {31 for 21} has been a failure of epic proportions. I’m not sure when we October ran past me, but it did and suddenly I’ve woken up and there are only 13 days left in this month. I had started with, what I thought was, a great idea – taking …
I’m walking around in a fog – or worse, on the constant edge of tears. Every time I allow myself time to just stop I end up back there and I can’t tear myself away. I know that I’ve joked in the past about my PTSD state post Lily’s cardiac arrest. I know that I’ve …
The last couple of weeks have shown some huge developments in Lily’s developmental skills. One of our new therapists from Holland Bloorview has just been this incredible ray of sunshine in our lives and it would be easy to chart Lily’s developments alongside Catherine’s visits. We’ve been lucky to have some incredible therapists working with …
If, fifteen years ago, you had told me that I would be able to sit in a room, reading medical records and understand the following sentence, “loss of grey-white differentiation consistent with Hypoxic Ischemic Encephalopthy; insult occurring in the bilateral parietal, temporal, occipital lobes and occurring the the posterior frontal lobe along the vertex”, I …
The snow just keeps piling up and all I want to do is bury my body under 6 layers of blankets and my head in an amazing book, but already the sounds of September and school are starting to call. A little background here. When Lily was first placed with us, we had found an …
When your child has a special need, regardless of whether it’s a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special. My problem is that I don’t know where …