I couldn’t let another World Down Syndrome Day go by without some sort of post. Looking back through, I realized that it’s been at least 2 years since I’ve spoken about this day at all, which is astonishing to me because it really is one of my favourite days of the year. Starting a few …
“The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate.” – Kelle Hampton There are some people who think we should have this all figured out; that …
One of the thoughts that I push aside most often is how Lily’s relationships will change as her friends get older. We just spent a wonderful weekend away with some friends and one of my favourite parts was watching their son interact with Lily. He has loved her since the minute she entered our lives …
“T’is the season when the saints can employ us to spread the news about peace and to keep love alive.” 10 points to you if you knew that was from A Muppets Christmas Carol, but another 10 points if you know that for all of the Christmas songs and carols out there, this is the …
Some part of me thought that we wouldn’t get here. I wouldn’t let myself actually look this far into the future and see this day. This 5 year old girl standing before me, strong and growing and shining with light, I didn’t think I’d see her. It’s given me new hope, if we can reach …
So, Lily has had a walker since she began junior kindergarten last year. We’ve had some success with it, mostly because the staff at her school are incredible and just keep pushing her. She would take a few steps but for the most part would just use both feet at the same time to push …