Cardiology came and went. They sedated, they scanned, they saw, they pronounced her heart strong and her lung pressures stable. They said to come back in a year. It was music to our ears. There was a moment, one breath-holding, heart stopping moment. While Lily was conked out from the sedation (which was rare in …
I’m Still Standing
In this case, a picture truly is worth a thousand words…. Beyond the absolute mess of our house (full on renovation mode, with everything from the basement now taking up residence in our living room/storage container), all I see is this: our incredible, amazing, awe inspiring, reminds me of what a miracle she is everyday, …
Which Mom Am I?
When your child has a special need, regardless of whether it’s a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special. My problem is that I don’t know where …
Just Say It
You’ll excuse me if I self-indulge for a minute or two. Sometimes being Lily’s mom is hard. Please don’t misunderstand, I don’t think there is a mother out there who can’t say that it is a hard job – balancing responsibilities, conflicting needs, finding a balance that keeps you sane while still meeting the needs …
Head and Shoulders…
I sometimes feel as though that as a whole, we need to look at our calendars and start thinking about adopting Rosh Hashanah as the new year for everyone. I don’t think that I’m alone in thinking that September always feels more like the new year than January does. Be it the years of school …
21 Magazine and Skeptics Be Damned!
A mom post today… Late last year, during Down Syndrome Awareness week, I saw a picture that the CDSS (Canadian Down Syndrome Society) had posted to twitter of a bunch of their staff sporting these awesome CDSS temporary tattoo’s. I sent a reply quickly, not thinking anything would come of it, asking where I could …