A mom post tonight… We’re very lucky to have some incredible role models for Lily within our Down Syndrome family and sometimes I need those role models as much, if not more, than she does. There are times when we’re hitting a milestone roadblock or we’re up to our ears in non-stop vomiting that I …
The Many Adventures of February 26th and Beyond
This last month has been totally and completely unreal and I barely know where to begin. I think it’s easiest to start telling you all about the crazy day of February 26th and then I’ll fill in the rest. I think I told you all in a different post that the people at Momma C’s …
Cookie Monster….I mean, Master….
A mom post tonight…. Although we try not to dwell on it too much, there are certainly some aspects of Lily’s diagnosis(s) that can be challenging as her parents. It can be really hard to see her work so hard and not make the gains that you want her to be making. It can get …
A Stand Up Day
I know that some of you may be under the impression that because I’m a little girl, that my life is pretty easy. But let me tell you, you can not come as far as I have in the last year without working a lot! Sometimes the work is kind of fun, like when Janet, my vision …
Becoming a Girl
A mom post tonight…. I was having a conversation with Lily’s OT this week while we were having a joint visit with our physiotherapist – a special treat. We were talking about how, when learning new skills, it has taken Lily a long time to figure things. She would plateau for ages but then one …
Happiness and Knowing Smiles
A mom post tonight… There is something about Lily that really seems to attract people. I know that sounds like a proud mom boasting, and maybe this really does happen to everyone, but we seem to get stopped a lot when we’re out with Lily. There’s just something about her – her eyes, her squishy …