5 years. Since just after that horrible day 4 years ago, the goal has been 5 years. “Take her home and grow her,” they told us, “if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5.” It seemed impossible. 5 years felt more like a …
We’re having a quiet day here at home. It’s raining outside and the mom’s say that makes people sleepy, plus I think I have this other tooth coming through and it’s making me slightly miserable. I’m thinking about having another nap, but at the same time it’s kind of fun to watch the mom’s get …
The mom’s and I are doing really well these days at just rolling with the punches. When we were first getting used to all my little quirks, it was easy for the mom’s to become overwhelmed when I hit a little bump in the road, but lately I’ve noticed that they seem to be better …
If I have learned one thing in my short but dramatic life, it’s that life really does work like a rubber ball – it bounces up and down between happy things and sad things before you can even realize what’s going on. I know the mom’s are wishing lately that there would either be a …
While my tiny giggle hasn’t turned into full out squeals of laughter yet, I have decided that it was time the real me, the smiley, happy, always content, can’t stop squirming me, made a grand reappearance. After December being a bit of a wash out with colds and probably some funny brain stuff, and January …
Today the mom’s decided that there had been enough being not so happy about all this seizure stuff going on. I have to admit that it wasn’t a great weekend. The medication has been making me very tired (which the mom’s don’t seem to mind sooo much because apparently I’m into a good “routine”). But …