Holding Tight to the Love

One of the thoughts that I push aside most often is how Lily’s relationships will change as her friends get older.  We just spent a wonderful weekend away with some friends and one of my favourite parts was watching their son interact with Lily.  He has loved her since the minute she entered our lives …

Keep Love Alive

“T’is the season when the saints can employ us to spread the news about peace and to keep love alive.” 10 points to you if you knew that was from A Muppets Christmas Carol, but another 10 points if you know that for all of the Christmas songs and carols out there, this is the …

We’re On the Next Chapter

The last of my guest voices is an incredible photographer, Kelly Searle, who I’m still hoping will decide to make an impromptu trip to Toronto one day when it just happens to be gorgeous outside so that I can use her incredible talent to capture some new photos of Lily, but I digress.  Kelly is …

Brotherly Love

Down Syndrome Awareness Month has come to an end, but luckily here in Canada, the first week of November is Down Syndrome Awareness week.  So while a cold that has kicked my butt kept me from finishing my project for 31 for 21 project for this year, I’m happy to bring it into November as …

Jax’s World

Shortly after Lily came home, Jess was talking to a woman who said to her, “I’ve heard about people like you.”  A little taken aback, for a moment Jess wasn’t entirely sure which of the “like you” categories the woman was referring to – lesbians or parents who had chosen a child with Down Syndrome. …

“I Just Want to Be His Mama”

The thing about the thread that binds parents of children with Down syndrome is that, like all thread, it can sometimes seem invisible.  There are moments in time when parenting our children can sometimes feel lonely.  This doesn’t mean that we don’t have amazing support systems from our family and friends but there are days …