I couldn’t let another World Down Syndrome Day go by without some sort of post. Looking back through, I realized that it’s been at least 2 years since I’ve spoken about this day at all, which is astonishing to me because it really is one of my favourite days of the year. Starting a few …
It’s been a year. A year since I’ve written anything. I don’t just mean here, but anywhere; a full year since I’ve put pen to paper or fingers to keyboard and written anything more meaningful than a thank-you card for Lily’s teachers at the end of the school year. I couldn’t begin to tell you …
My dad is gone. I’ve avoided saying those exact words and typing those exact words, but those are the words that keep swirling around in my head. My dad is gone. I’ve been quiet about his diagnosis, his short but courageous journey, for reasons that I don’t even entirely understand myself. For someone who shares …
Some years it really is easier and then, out of what feels like total left field, it’s a bad year again. I’ve written about this week before and how my mind is completely distracted, but I don’t think I’ve talked about the weight of it, the physical ache, the near-constant feel of tears behind my …
One of the thoughts that I push aside most often is how Lily’s relationships will change as her friends get older. We just spent a wonderful weekend away with some friends and one of my favourite parts was watching their son interact with Lily. He has loved her since the minute she entered our lives …
Next week will be the culmination of the last few months for me. There have been things going on behind the scenes – nothing with Lily, just some time spent reflecting on how to become the person that I see in myself versus the person that I portray to the rest of the world. It’s …