Jax’s World

Shortly after Lily came home, Jess was talking to a woman who said to her, “I’ve heard about people like you.”  A little taken aback, for a moment Jess wasn’t entirely sure which of the “like you” categories the woman was referring to – lesbians or parents who had chosen a child with Down Syndrome. …

31 for 21: The Rest of the Journey

We took some time after Paxton to just settle for a bit.  After all of the rushing, we didn’t want to keep pushing ahead and were obviously scared about more heartbreak.  We needed the time to reflect and figure out what to do differently the next time.  We knew that there would be a next …

31 for 21: Days 5 & 6

12 months after camp ended, we were back again.  It was a completely different experience leading up to our time away; I felt like a teenager who aches to be back at summer camp all through the school year because that’s where she really belongs.  I couldn’t wait to get back and see everyone and …

Ask Away

So clearly my attempt at {31 for 21} has been a failure of epic proportions.  I’m not sure when we October ran past me, but it did and suddenly I’ve woken up and there are only 13 days left in this month.  I had started with, what I thought was, a great idea – taking …

Love is Love

This is my Pride.  It took a lot of years, but then this lady happened and suddenly everything made sense.  I was no longer ashamed or worried about what people would think.  The door opened to a world where love is just love, and families and just families, and I get to spend every single …

Which Mom Am I?

When your child has a special need, regardless of whether it’s a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special.  My problem is that I don’t know where …