I couldn’t let another World Down Syndrome Day go by without some sort of post. Looking back through, I realized that it’s been at least 2 years since I’ve spoken about this day at all, which is astonishing to me because it really is one of my favourite days of the year. Starting a few …
Another Brick in the Wall
My dad is gone. I’ve avoided saying those exact words and typing those exact words, but those are the words that keep swirling around in my head. My dad is gone. I’ve been quiet about his diagnosis, his short but courageous journey, for reasons that I don’t even entirely understand myself. For someone who shares …
I Want…
Some years it really is easier and then, out of what feels like total left field, it’s a bad year again. I’ve written about this week before and how my mind is completely distracted, but I don’t think I’ve talked about the weight of it, the physical ache, the near-constant feel of tears behind my …
To Witness Love
You might think, from the title, that I’m about to tell you how incredible it was to witness the birth of my new niece, Penelope, this week. You’re not entirely wrong. Being allowed to be in that room, to share this moment with my sister – my other half – is beyond anything I can …
Holding Tight to the Love
One of the thoughts that I push aside most often is how Lily’s relationships will change as her friends get older. We just spent a wonderful weekend away with some friends and one of my favourite parts was watching their son interact with Lily. He has loved her since the minute she entered our lives …
Keep Love Alive
“T’is the season when the saints can employ us to spread the news about peace and to keep love alive.” 10 points to you if you knew that was from A Muppets Christmas Carol, but another 10 points if you know that for all of the Christmas songs and carols out there, this is the …