It’s been a long couple of days. I’ve been hit with bout of insomnia like I’ve never experienced before. I have insomnia often, but usually it just means that regardless of what time I crawl into bed, it’s 2 or 3am before I’m finally able to crash out, but this time was different and I’ve …
The Amazing Constant Chaos
When you parent a child with special needs and any type of medical needs, you often hear people say, “I don’t know how you do it.” Most of the time I just shrug it off because I don’t always know either, but as a parent, you don’t think about it, you just do it. However, …
The Things I Didn’t Know
Clearly I missed day two of of {31 for 21} but I think it was for a good reason and actually the subject of today’s post. October 2nd is our wedding anniversary and while Jess has been sick for a couple of weeks and totally not up to a night of celebrating, it was the …
A Challenging Post
I find one of the most difficult challenges about parenting a child with special needs is trying to find a work/life balance in a world where these 2 things don’t always want to play nicely together. I’m incredibly fortunate that my job offers flexible hours and it is a benefit that I value over any …
Remedy For A No-Sleep Night
Lily is still awake. She’s not feeling great and has been off. She’s impossible to distract, crying unless she’s being held and generally just messy. It’s been, what we call, in this house, a 2 parent day – where it is literally impossible to put her down for the fear of her vomiting again because …
Dear Sir or Ma’am
For the first time I had someone laugh at Lily. I wasn’t expecting it and it shocked and sickened me. I sat there, looking at my instragram page and saw those seemingly innocent letters: “lmfao”. I peeked at the user pic and I wanted to vomit. I knew once I clicked on the profile that …