By being a, “heart mom”, we get to see a lot of amazing things that happen on the 4th floor of Sick Kids. The staff – doctors, nurses, OT’s, dieticians, child life specialists – they all play such a huge role in making incredibly scary situations actually seem managable. Luckily, behind them, is a group …
Looking Forward
The snow just keeps piling up and all I want to do is bury my body under 6 layers of blankets and my head in an amazing book, but already the sounds of September and school are starting to call. A little background here. When Lily was first placed with us, we had found an …
Happy Heart, Happy Birthday
Cardiology came and went. They sedated, they scanned, they saw, they pronounced her heart strong and her lung pressures stable. They said to come back in a year. It was music to our ears. There was a moment, one breath-holding, heart stopping moment. While Lily was conked out from the sedation (which was rare in …
Which Mom Am I?
When your child has a special need, regardless of whether it’s a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special. My problem is that I don’t know where …
Just Say It
You’ll excuse me if I self-indulge for a minute or two. Sometimes being Lily’s mom is hard. Please don’t misunderstand, I don’t think there is a mother out there who can’t say that it is a hard job – balancing responsibilities, conflicting needs, finding a balance that keeps you sane while still meeting the needs …
No More Tears
Today was the first of the two eye surgeries that Lily needs to have done. We, mistakenly, thought that they were going to do both procedures at once but since that is not the plan we went ahead with the first one today – a simple tear duct probing. Lily, along with a ton of …