If, fifteen years ago, you had told me that I would be able to sit in a room, reading medical records and understand the following sentence, “loss of grey-white differentiation consistent with Hypoxic Ischemic Encephalopthy; insult occurring in the bilateral parietal, temporal, occipital lobes and occurring the the posterior frontal lobe along the vertex”, I …
Happy Heart, Happy Birthday
Cardiology came and went. They sedated, they scanned, they saw, they pronounced her heart strong and her lung pressures stable. They said to come back in a year. It was music to our ears. There was a moment, one breath-holding, heart stopping moment. While Lily was conked out from the sedation (which was rare in …
“Today”
A mom post today…. We were driving to the zoo on Sunday morning and Jess turned to me “Do you know what today is? It’s today.” Such simple words but ones with so much meaning between the two of us – it’s almost like a secret language. “Today” was the day that we almost lost …
The Many Adventures of February 26th and Beyond
This last month has been totally and completely unreal and I barely know where to begin. I think it’s easiest to start telling you all about the crazy day of February 26th and then I’ll fill in the rest. I think I told you all in a different post that the people at Momma C’s …
Can You See the Difference?
Guys, do you remember what you were doing one year ago today? Because I do…well, kind of. At this time, one whole year ago, I was actually pretty out of it because I had just come out of my second open heart surgery. You see, when I was born there were some big time problems …
By The Numbers
98582827495: the number of people in line at the Starbucks at Sick Kids today. 189: the number of days before I need to see my cardiologist again. 99: the highest my oxygen saturation levels were at today (does anyone else remember when we were happy when it was 77?) 30: the number of seconds it …